Notes from HIPS November 07 Seminar
Section 56
- - Need to be consistent across Fed/State Public /Private
- - Common platform for the application of privacy (ref: Microsoft Presentation)
- - Privacy is technology neutral
- - Cross boundary data flows (off shore - Global)
- o Consistent requirements
- o Transmission
- o Storage
- o Application
- o Auditable requirements
- - Provisions applied across boarder
- - Conformance testing of above
- - Apply technical solutions to reduce risk
- - Take into account other regulatory environments around registered / partially registered practitioners and providers
- - Definition of health providers own privacy rights (these need to be recognized)
- o involvement of colleges
- o look at 57.6?
- - Well resourced nationally consistent process for managing privacy complaints (not delegated to state/territory)
- - HERC - have they the capacity and process to support the requirements of the proposals
- - How do we ensure HERC operate in a consistent way
- o have they got the skill set to make the decision
- o (note they have the power to co-opt experts and also some states have expert panels)
- o note NHMRC - HERC relationship needs to be aligned on ethics committees
- o Standards and assessment against the standards
- - Define process for data custodians to enable them to provide data to researchers
- o currently very variable
- - What has been approved by HERC's is not always fully conveyed to data custodians
- - Protection of providers not to have the look at all available data in the record
- o duty of care
- - Rules for reasons to collect data
- o Who is the umpire (Victoria -> Health Services commissioner) for operational data(?)
- o What are the guidelines
Section 57
- - Is there explicit recognition of the personal health record and what are the implications
- - Definition of how customers must be informed about the transfer of information
- - What about health records which have multiple patients information
- o how are these handled
- o family history/ fertility/ paternity
- o teenage/parents
- - Look at existing projects which deal with these issues and look at how they handle this
